Posterior Cortical Atrophy http://posterior-cortical-atrophy.posterous.com Information, support and contacts for patients and carers posterous.com Wed, 12 Sep 2012 11:10:00 -0700 PCA - a summary http://posterior-cortical-atrophy.posterous.com/pca-a-summary http://posterior-cortical-atrophy.posterous.com/pca-a-summary

PR professional, Danny Whatmough asked on Twitter tonight: "Does anyone actually use Siri?"

My response was "Yes - PCA patients. While they are still speaking but not seeing properly, they find it useful."  I needed to point him to somewhere sensible for a more detailed explanation of the condition and realised this blog was missing one.  

So I had a dig around the internet and came across the document that appears below.  It was posted on a Yahoo! discussion group and written up by specialists at the Mayo clinic in America so the references are naturally US-centric.  All the same, it does a good job...

Posterior_Cortical_Atrophy.pdf Download this file
 

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Mon, 10 Sep 2012 14:22:00 -0700 September 2012 newsletter http://posterior-cortical-atrophy.posterous.com/september-2012-newsletter http://posterior-cortical-atrophy.posterous.com/september-2012-newsletter

The newsletter is a little unclear in the meeting announcement, but Jill wanted to get this information out asap.  Therefore we can confirm that the Friday 26 October meeting will take place in the Wilkins Haldane Room, which is in the same UCL building as we have used for the last two meetings.  

The address details are given in the newsletter and there will be notices around to direct you.  It's not far from the Old Refectory.

The next two meetings have also been booked for 22 March 2013 and 5 July 2013.

 

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